The Very Real Cost of Denial, Apathy and Complacency: Don’t Wait for the (Sinemet) Honeymoon to be Over!
This post was originally published in the PD Gladiators newsletter. When you’re first diagnosed with Parkinson’s disease, it’s typical to go through the stages of grief. Without counseling, many view the diagnosis as a death sentence, with nothing to do but take medicine to mask the symptoms until the...
If We Build It, Will They Come? Part II
This post was originally posted on the PD Gladiators blog. In Part I of this post I suggested that the Parkinson’s community needs to build an exercise infrastructure in order to coax the secluded majority of people with Parkinson’s to join the community and participate in exercise programs, physical...
If We Build It, Will They Come? Part I
This post was originally published in the PD Gladiators blog. Ellie and I attended the Southeastern Parkinson’s Conference hosted by the National Parkinson’s Foundation in August, and for the second year in a row we left inspired. The theme of the conference was Parkinson’s advocacy, and we were encouraged...